Childhood Liver Disease Research Network
ChiLDRN Supports the discovery of new diagnostics, etiologic and treatment options for children with liver disease, and those who undergo liver transplantation.
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AACAP – Understanding Risk and Protective Factors for Suicide
Provides a brief overview of the importance of risk and protective factors as they relate to suicide and offers guidance about how communities can best use them to decrease suicide risk.
Got Transition
Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.
Disability Rights PA Transition Resources
Disability Rights Pennsylvania (DRP) offers a self-advocacy guide for transition to adulthood, with information to help you in advocating for yourself or someone else with a disability.
Spina Bifida Program Advisory Board
The Spina Bifida Program Advisory Board collaborates with the clinical team to advocate for patients and empower and educate families.
Pennsylvania Health Law Project: Medical Assistance
The Pennsylvania Health Law Project (PHLP) is a non-profit legal services organization that represents Pennsylvanians who need help getting or keeping Medicaid (Medical Assistance or MA). Their "self help" resource library includes information about medical assistance for workers with disabilities, Medicare/Medicaid dual eligibility, application process for OLTL waivers, and more.
PA Independent Enrollment Broker (IEB)
The PA IEB provides enrollment support for Pennsylvania’s Home and Community Based (HCBS) waiver programs.
Guardianship in New Jersey
A guardian is someone that is legally authorized to act on behalf of a minor or an incapacitated adult to assure that the person’s health, safety, and welfare needs are met and that their rights are protected. New Jersey provides helpful information on obtaining guardianship and a guardianship packet.
Centers for Independent Living - New Jersey
Centers for Independent Living (CILs) are community-based, consumer-driven organizations that provide information and referral, peer counseling, skills training, advocacy and a variety of services based on individual needs. Find CIL services in New Jersey.
Centers for Independent Living - Pennsylvania
Centers for Independent Living (CILs) are community-based, cross-disability, non-profit organizations that are designed and operated by people with disabilities. Learn more about the services provided by Pennsylvania CILs.