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The American Syringomyelia & Chiari Alliance Project Inc. (ASAP) is a nonprofit organization dedicated to improving the lives of individuals affected by Chiari malformation, syringomyelia, and related disorders. They provide support, education and information for patients and their families, fund research, and work to increase awareness and understanding of these conditions.
The American Cancer Society website offers helpful information about childhood cancer diagnosis, treatment, prognosis and resources.
NFFA is a parent volunteer group that exists to support families and individuals at CHOP who are affected by neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) or schwannomatosis.
Provides a brief overview of the importance of risk and protective factors as they relate to suicide and offers guidance about how communities can best use them to decrease suicide risk.
In this webinar CHOP experts discuss neuropsychological evaluation, the legal rights of students, and how to support your child as he returns to learning.
The NF2 Crew is an online support community for patients and family members (and other loved ones) with neurofibromatosis type 2.
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.