National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
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Living with XXY
A blog by Ryan Bregante about what it means to live with Klinefelter syndrome, also known as 47 XXY, including helpful resources, personal stories, local meetings and much more.
Association for X and Y Variations (AXYS)
AXYS is an advocacy, education and support organization for individuals with X and Y chromosome variations and their families.
22q Support Groups in the United States
Find a list of support groups for chromosome 22q11.2 deletion in the United States.
22q International Support Groups
Find a list of International support groups for chromosome 22q11.2 deletion.
American College of Allergy, Asthma & Immunology
The American College of Allergy, Asthma & Immunology provides information and resources about allergies and asthma for patients and families.
International 22q11.2 Foundation Inc.
The Foundation provides medical, educational, psychosocial and local support resources for people with the 22q11.2 deletion syndrome and their families.