Diabetes: The Take 15 Challenge
It takes just 15 minutes a day to test blood sugar, count carbs, calculate and give the insulin dose that will take care of your diabetes.
Caring for your child
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Taking Care of Your Child Emotionally in Dealing With Diabetes
Diabetes can take an emotional toll on your child (and you!). Here are a few ideas on how to you can support your child/teen.
Diabetes Apps
Find diabetes apps for you phone to help you with carb counting, keeping track of your blood sugar, calories intake and more.
SparkRecipes
Find and rate low calorie, healthy recipes at SparkRecipes. Use the free recipe calculator to find the calories, carbs, fat and protein in your recipes.
Undiagnosed Diseases Network (UDN)
Research program funded by the National Institute of Health (NIH). Some patients seen in the CHOP UDP are eligible and will also be asked if they want to enroll in the research side. You can visit their website to learn more about the research they conduct. Adult patients may be seen by the UDN site at Penn.
National Organization for Rare Disorders (NORD)
An educational link for organizations and individuals concerned with a rare disorder. They monitor legislation, research diseases, award grants and network individuals.
Applying for Pennsylvania Medical Assistance (PAMA)
This resource from Children’s Hospital of Philadelphia describes how to apply for PA medical assistance as secondary insurance.
Orphan Disease Program
Visit this website for details on orphan (rare) diseases and treatments. Additional information like drug development, orphan product designations, and how the FDA supports rare disease research. You can also find a list of drugs approved for rare conditions and ongoing clinical trials.
Ryan’s Case for Smiles CopingSpace
This website provides resources for families that of children with any medical diagnosis, including sibling supports, caregiver supports, age appropriate books and resources. They also outline TV shows, educational resources for providers, educators, and mental health resources
RareShare
Create an account to join closed support groups specific to rare genetic conditions including undiagnosed.