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Research program funded by the National Institute of Health (NIH). Some patients seen in the CHOP UDP are eligible and will also be asked if they want to enroll in the research side. You can visit their website to learn more about the research they conduct. Adult patients may be seen by the UDN site at Penn.
Visit this website for details on orphan (rare) diseases and treatments. Additional information like drug development, orphan product designations, and how the FDA supports rare disease research. You can also find a list of drugs approved for rare conditions and ongoing clinical trials.
Create an account to join closed support groups specific to rare genetic conditions including undiagnosed.
F.E.A.S.T. walks alongside families as they navigate the challenges of their loved one’s eating disorder. We provide parents and caregivers with transformative peer support, education, empowerment, and community through a multitude of top-notch free programs and services.
FEAST 30 Days is an innovative and unique program designed to educate and empower parents and caregivers of people with eating disorders. Participants will receive one lesson per day, delivered to their inbox, over the course of 30 days.
Eating Disorders are serious mental illnesses with dangerous medical consequences. Without early intervention, eating disorders may become chronic or even fatal. Parents are often unaware of some of the early signs of an eating disorder. This blog covers a variety of helpful topics.
Help for parents of children and teens suffering from anorexia and other eating disorders