Face to Face Portrait Project
The Face to Face Portrait Project creates portraits of children and adolescents with craniofacial conditions to help them see themselves in a different light.
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The Face to Face Portrait Project creates portraits of children and adolescents with craniofacial conditions to help them see themselves in a different light.
Important questions to ask potential providers when looking for a program to treat your child’s craniofacial difference.
Philly Phaces provides peer support, advocacy, and resources to help Philadelphia-area children facing appearance differences from craniofacial abnormalities and cleft lip and palate.
March of Dimes is an international organization that works to prevent birth defects, premature birth, and infant mortality and to support expectant and new parents.
Cure HHT has consistently been at the center of the national and global effort to advocate for patients and families, raise awareness of HHT, guide and fund critical research, create lasting collaborations and encourage scientists to work on new treatments.
From the Annals of Internal Medicine, the Second International Guidelines for the Diagnosis and Management of Hereditary Hemorrhagic Telangiectasia.
This resource provides a view of the many treatment options for nosebleeds cause by Pediatric Hereditary Hemorrhagic Telangiectasia (HHT).
Learn more about craniosynostosis and surgical treatment for the condition.
Learn more about jaw surgery and how it's managed at CHOP.
The American Society of Plastic Surgeons (ASPS) offers information about cleft lip and cleft palate repairs.