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Showing 1 - 10 of 17 results

Health resource

Face to Face Portrait Project

The Face to Face Portrait Project creates portraits of children and adolescents with craniofacial conditions to help them see themselves in a different light.

Health resource

Philly Phaces

Philly Phaces provides peer support, advocacy, and resources to help Philadelphia-area children facing appearance differences from craniofacial abnormalities and cleft lip and palate.

Health resource

March of Dimes

March of Dimes is an international organization that works to prevent birth defects, premature birth, and infant mortality and to support expectant and new parents.

Health resource

CureHHT

Cure HHT has consistently been at the center of the national and global effort to advocate for patients and families, raise awareness of HHT, guide and fund critical research, create lasting collaborations and encourage scientists to work on new treatments.

Health resource

HHT Guidelines

From the Annals of Internal Medicine, the Second International Guidelines for the Diagnosis and Management of Hereditary Hemorrhagic Telangiectasia.

Health resource

HHT Nosebleed Treatment Options

This resource provides a view of the many treatment options for nosebleeds cause by Pediatric Hereditary Hemorrhagic Telangiectasia (HHT).

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