Transplant Recipients International Organization (TRIO)
TRIO is committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors.
Caring for your child
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National Cancer Institute — Wilms Tumor and Other Childhood Kidney Tumors
The National Cancer Institute is the nation's trusted source of information about Wilms tumor and other types of childhood cancers.
The Genetic Information Nondiscrimination Act (GINA)
GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.
GeneReviews™
GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.
Pediatric Transplant Center Financial Counseling
The Transplant Center has a dedicated financial counselor who will work with you and your insurance company to obtain detailed insurance benefits for all aspects of the transplant process.
Beckwith-Wiedemann Syndrome Support Group – U.K.
Beckwith-Wiedemann Syndrome Support Group – U.K. supports families of children with Beckwith-Wiedemann syndrome, promotes public and professional awareness of BWS, and supports and encourages research.
Genetics Home Reference — Beckwith-Wiedemann syndrome
The Genetics Home Reference is an online guide from the National Institutes of Health designed to help you understand genetic conditions. It includes a handbook, glossary and resources.
National Wilms Tumor Study
National Wilms Tumor Study is a non-profit federally funded research study.
Medline Plus — Beckwith-Wiedemann Syndrome
Medline Plus is the National Institutes of Health's website for patients and their families and friends.
Gorlin Syndrome Group
The Gorlin Syndrome Group is a network offering guidance and information to patients, their families and caregivers whose lives are affected by Gorlin Syndrome.