Cancer Hope Network
Cancer Hope Network provides free and confidential one-on-one emotional support to cancer patients, their caregivers, and their family members.
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Showing 1 - 10 of 23 results
Childhood Cancer: A Parent's Guide to Solid Tumor Cancers
This book features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas.
National Urea Cycle Disorders Foundation
The National Urea Cycle Disorders Foundation provides information and resources to those affected by urea cycle disorder (UCD).
Organic Acidemia Association
The Organic Acidemia Association funds research and provides support for individuals affected by organic acidemia metabolic disorders.
United Mitochondrial Disease Foundation
The United Mitochondrial Disease Foundation promotes research for and education about mitochondrial disorders to those affected by them.
NJ Statewide Parent Advocacy Network
The website offers families and professionals information, resources, support and advocacy assistance.
Taking On Challenges: Surgical Oncology Options for Solid Tumors
CHOP's pediatric surgical oncology team consists of experts with extensive experience in various types of cancers, including neuroblastoma, brain and bone tumors, as well as other rare and hard-to-treat cancers.
How Much Phe?
"A comprehensive diet-management system for PKU with phe/pro/exchange and calorie values for more than 7,000 foods. Easily record, chart, and export your intake and blood levels."
The Mid-Atlantic Connection for PKU and Allied Disorders
MACPAD is a network of individuals and families touched by phenylketonuria and allied disorders. Their website provides educational resources, newborn screening information, support groups, upcoming events, and more.
National PKU Alliance
The NPKUA provides information and support to adults and families affected by phenylketonuria, advocates for the reimbursement of medical foods, and invests in targeted and peer-reviewed research. Find helpful resources, educational information, news and events, and how you can take get involved.