Cystic Fibrosis Foundation
CFF is the world’s leader in the search for a cure for cystic fibrosis. Find information about CF, including treatment and research and how you can get involved.
Caring for your child
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Showing 1 - 9 of 9 results
Ethics Consultation Service
When you face an ethical dilemma concerning your child's care, our staff can help. We are available to support you and the healthcare team as you work together to make important decisions about your child's treatment.
Many ways to say thank you
Patients and families have asked how they can show their appreciation to CHOP. Personal gifts are never expected, and CHOP policy does not allow staff to accept personal gifts. There are many ways for families to give back. Learn how.
Social media guidance for families
This guide for families shares helpful information about issues that may arise when families are using social media to connect with CHOP staff members. Learn more.
Photo/video guidance for families
Families often want to capture their child’s CHOP journey by taking photos or videos. The Department of Medical Ethics offers helpful guidance around patient and staff privacy at CHOP when taking photos or videos. Follow these guidelines.
Cystic Fibrosis My Way: Managing Daily CF Care
In this series of videos, cystic fibrosis patients from The Children's Hospital of Philadelphia show how to properly perform some common CF therapies at home.
Scholarship and Grant Programs for Cystic Fibrosis Patients
Cystic fibrosis patients should consider this list of scholarship opportunities and grants. Look for one that might be a fit for you.
Virtual Driving Assessment: Preparing Teens to Drive Safely
Simulated driving assessments being piloted at select CHOP Primary Care locations gauge a teen’s ability to drive safely and avoid crashes.
Virtual Cooking Classes for Children with Cystic Fibrosis and their Families
Sign up for virtual cooking classes on healthy eating for children with cystic fibrosis (CF) or watch previously recorded classes.