National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
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Chronic Lung Disease of Prematurity
This handbook includes educational information on chronic lung disease related to prematurity. Available in English and Spanish.
Caring for your Child with Chronic Lung Disease Related to Prematurity
Handbook for school-age and adolescent children living with chronic lung disease related to prematurity