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Cure HHT has consistently been at the center of the national and global effort to advocate for patients and families, raise awareness of HHT, guide and fund critical research, create lasting collaborations and encourage scientists to work on new treatments.
From the Annals of Internal Medicine, the Second International Guidelines for the Diagnosis and Management of Hereditary Hemorrhagic Telangiectasia.
This resource provides a view of the many treatment options for nosebleeds cause by Pediatric Hereditary Hemorrhagic Telangiectasia (HHT).
The “Developmental Therapy Group” is a group program offered at Virtua Specialty Care Center. Four children participate in an 8-week Physical and Occupational Therapy developmental group aimed at improving skills such as independence with dressing, clothing fasteners, utensil use and handwriting as well as improving general strength, balance and coordination. If your child is age 4 - 8 years old and you'd be interested in participating, please contact devgroupVirtua@chop.edu.
View a variety of help hotlines, as well as websites available for families in need.
The Education Law Center of PA advocates for children with learning disabilities to ensure that all children have access to a quality public education. To contact the local office by phone, call 215-238-6970.
Many adaptive sport programs are available in Philadelphia and the surrounding region, while others are offered nationwide.