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The Canavan Foundation is a 501c3 not-for-profit organization dedicated to educating at-risk populations about Canavan disease and other genetic diseases and the reproductive options available to carrier couples. We encourage preconception genetic carrier screening whenever appropriate. In addition, the foundation supports research towards treatments and a cure for Canavan disease.
At ALD Connect, our mission is to improve the health outcomes of individuals affected by adrenoleukodystrophy (ALD). By empowering patients, raising awareness, and accelerating the translation of scientific breakthroughs into better clinical care, we aim to make a lasting impact on the ALD community. Together, we are committed to revolutionizing care and driving progress toward a cure.
The Mission Massimo Foundation aims to exponentially accelerate the discovery of novel genetic variations responsible for childhood Leukodystrophies and to translate these findings into clinical treatments.
Creating a support network for individuals, families, and friends affected by AxD.
Working towards a cure for Multiple Sulfatase Deficiency
Provides information about H-ABC to spread awareness about this degenerative disease, and raises funds for research on gene therapy treatments that could stop the degenerative effects of H-ABC.
It aims to exponentially accelerate the discovery of novel genetic variations responsible for childhood leukodystrophies and to translate these findings into clinical treatments.
Join the team committed to finding a cure for MSD
Raising funds and awareness to help find a cure for H-ABC.
The mission of the National Institute of Neurological Disorders and Stroke (NINDS) is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease.