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Got Transition has developed two different measurement approaches, described below, to assess the extent to which the Six Core Elements of Health Care Transition 2.0 are being incorporated into clinical processes.
This document should be completed by pediatric medical providers, in collaboration with patients and their caregivers, then should be shared with the transitioning patient’s new, adult medical providers, as well as the patient and their caregivers, as appropriate.
This is a sample of a letter to be written by the pediatric provider, and sent to the new adult provider of a patient transitioning to adult care.
The KISS Initiative is an online Facebook support group for families of pediatric stroke survivors. It is a public forum where parents share stories, resources and support.
The World Pediatric Stroke Association (WPSA) works to raise awareness, knowledge and research about pediatric stroke. WPSA has a blog written by parents of stroke survivors and opportunities to connect with other families.
This resource will help to show what your child already knows about their health; and will show areas that you think they (or you) need to know more about as they transition to an adult healthcare provider.
Dr. Marni Falk provides a list of systems that can be affected by mitochondrial disease, in this video by the United Mitochondrial Disease Foundation.
Dr. Marni Falk explains how healthy mitochondria work. She discusses how mutations in the mitochondrial and nuclear genomes can affect human health.
Drowning is the second leading cause of injury-related death in children, and those with cognitive issues like Down syndrome and autism are at greater risk.
While every family should have a home fire safety plan, it's critical if you have a family member with cognitive or physical disabilities.