Rosenau Family Research Foundation
Improving the lives of patients impacted by Krabbe disease and Cystic Fibrosis through research funding and disease advocacy.
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MLD Foundation
MLD Foundation was formed in May 2001 to serve families throughout the world affected by metachromatic leukodystrophy (MLD), an ultra-rare, terminal, neurometabolic, genetic disease.
PMD Foundation
This family driven foundation will proactively serve those affected by Pelizaeus-Merzbacher Disease (the PMD community) by supporting programs of education, research, service and advocacy.
Canavan Foundation
The Canavan Foundation is a 501c3 not-for-profit organization dedicated to educating at-risk populations about Canavan disease and other genetic diseases and the reproductive options available to carrier couples. We encourage preconception genetic carrier screening whenever appropriate. In addition, the foundation supports research towards treatments and a cure for Canavan disease.
ALD Connect
At ALD Connect, our mission is to improve the health outcomes of individuals affected by adrenoleukodystrophy (ALD). By empowering patients, raising awareness, and accelerating the translation of scientific breakthroughs into better clinical care, we aim to make a lasting impact on the ALD community. Together, we are committed to revolutionizing care and driving progress toward a cure.
Mission Massimo Foundation
The Mission Massimo Foundation aims to exponentially accelerate the discovery of novel genetic variations responsible for childhood Leukodystrophies and to translate these findings into clinical treatments.
Elise’s Corner
Creating a support network for individuals, families, and friends affected by AxD.
MSD Action Foundation
Working towards a cure for Multiple Sulfatase Deficiency
Foundation to Fight H-ABC
Provides information about H-ABC to spread awareness about this degenerative disease, and raises funds for research on gene therapy treatments that could stop the degenerative effects of H-ABC.
Mission Massimo Foundation
It aims to exponentially accelerate the discovery of novel genetic variations responsible for childhood leukodystrophies and to translate these findings into clinical treatments.