European Leukodystrophy Association
Provides assistance and support to families affected by leukodystrophy, funds research projects, raises public awareness, and collaborates with international organizations to pool resources to develop research.
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The FPIES Foundation
The FPIES Foundation is dedicated to overcoming the challenges of food-protein induced enterocolitis syndrome by offering tools for education, support and advocacy.
NINDS Rett Syndrome Information
The mission is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease for all people.
34th Annual Inflammatory Bowel Disease Education Day Videos
Please join us next year, on Sunday, February 22, 2026 for the 35th Annual Inflammatory Bowel Disease Education Day.
Imagine a Rainbow: A Child’s Guide for Soothing Pain
A book for children ages 2 and up that teaches how mindfulness, visualization and deep breathing can help manage chronic pain. By Brenda Miles.
United Leukodystrophy Foundation (ULF)
ULF is a non-profit, voluntary health organization dedicated to funding cutting-edge research and to providing patients and their families with disease information and medical referrals.
Kathy's Hats: A Story of Hope
This is a story of a 9-year-old who has always enjoyed wearing hats. But when she loses her hair from cancer treatments, suddenly hats aren't so much fun anymore.
To the Edge and Back
To the Edge and Back is a book by Chris Klug about his journey from receiving a liver transplant to becoming an Olympic snowboarder and the first Olympic athlete to win a medal after an organ transplant.
American Migraine Foundation
The American Migraine Foundation provides information about migraine symptoms and triggers in children, how to help your child manage migraines, and strategies for coping with migraines at school and in other social situations.
Canadian Liver Foundation
This foundation is devoted to providing support for research and education into the causes, diagnoses, prevention and treatment of all liver disease.