Lymphatic Education & Research Network (LE&RN)
LE&RN fosters and supports research regarding understanding of the lymphatic system. Website has information on clinical trials and research updates.
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Lymphatic Research Foundation
A 501(c) (3) not-for profit organization whose mission is to advance research, find the cause of and cure for lymphatic disease. Includes factual information, resources, newsletter, and a medical journal.
Medicaid - Transportation Assistance
Assistance available to patients who are enrolled in Medicaid coverage, including non-emergency medical transportation or mileage reimbursement for outpatient appointments (local and long distance) as well as lodging and meal assistance if travelling from out of town for hospitalizations and out-patient visits.
National Lymphedema Network, Inc.
Advocacy and support for primary and secondary lymphedema. Includes factual information, physician and therapy centers, resources, and a newsletter.
National Organization for Vascular Anomalies (NOVA)
Hemangioma and vascular malformation advocacy and support. Includes physician list, related support services, patient networking, blogs, and transportation services.
NeedyMeds
Information on medicine and healthcare assistance programs.
Operation Smile
This is the website for Operation Smile a not-for profit international organization that treats facial deformities.
Parents Helping Parents
PHP increases the quality of life for children with special needs by providing services, resources and support for children, their families, and caregivers.
Pfizer RSVP
Reimbursement Solutions, Verification, and Payment HELPline. Program to help both insured and uninsured patients access Pfizer medicines (including Rapamune/Sirolimus).
Pacific Pediatric Neuro-Oncology Consortium (PNOC)
PNOC is a network of eight children’s hospitals that conduct clinical trials of new therapies for children with brain tumors.