Birthmarks.com
Information, recommendations, active interchange, and lots of resources about port wine stains and hemangiomas. Provides a free private newsgroup or subscription to an online newsletter.
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CarePages
A free service that allows families to easily create web pages during a health challenge to keep friends and family informed.
CLOVES Syndrome Community
Supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome.
Exceptional Parent Magazine
A magazine for parents of children with special needs.
Hereditary Hemorrhagic Telangiectasia (HHT) Foundation
HHT provides advocacy and support. Includes factual information, research updates, helpful links, and a newsletter.
Klippel-Trenaunay (KT) Support Group
Vascular Malformation advocacy and support. Includes factual information and resources.
Lymphangiomatosis & Gorham Disease Alliance (LGDA)
Promotes research that will identify effective treatments and ultimately a cure for these diseases. Provides support to patients and their families; education and hope to those affected by these rare lymphatic malformations. **Website also has information on the International LGDA Registry for Lymphatic Malformations**
Lymphatic Education & Research Network (LE&RN)
LE&RN fosters and supports research regarding understanding of the lymphatic system. Website has information on clinical trials and research updates.
Lymphatic Research Foundation
A 501(c) (3) not-for profit organization whose mission is to advance research, find the cause of and cure for lymphatic disease. Includes factual information, resources, newsletter, and a medical journal.
Medicaid - Transportation Assistance
Assistance available to patients who are enrolled in Medicaid coverage, including non-emergency medical transportation or mileage reimbursement for outpatient appointments (local and long distance) as well as lodging and meal assistance if travelling from out of town for hospitalizations and out-patient visits.