National Adrenal Diseases Foundation
The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life.
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Preparing Students with a Disability for a Post-secondary Education
Penn State Educational Equity website provides a comprehensive checklist that students with disabilities and their parents can use to help prepare them for a post-secondary education.
Beckwith-Wiedemann Syndrome Support Group – U.K.
Beckwith-Wiedemann Syndrome Support Group – U.K. supports families of children with Beckwith-Wiedemann syndrome, promotes public and professional awareness of BWS, and supports and encourages research.
Genetics Home Reference — Beckwith-Wiedemann syndrome
The Genetics Home Reference is an online guide from the National Institutes of Health designed to help you understand genetic conditions. It includes a handbook, glossary and resources.
National Wilms Tumor Study
National Wilms Tumor Study is a non-profit federally funded research study.
Medline Plus — Beckwith-Wiedemann Syndrome
Medline Plus is the National Institutes of Health's website for patients and their families and friends.
The Plastic Bronchitis Foundation
The Plastic Bronchitis Foundation provides information about plastic bronchitis, research into treatments, family support services and more. The group also helps raise awareness of plastic bronchitis, funds research into the disease and assists patients and their families with treatment-related travel expenses.
Lymphangiomatosis and Gorham's Disease Alliance
The mission of the LGD Alliance is to improve the care of patients with lymphangiomatosis and Gorham's disease by promoting research that will identify effective treatments and ultimately a cure. On this site, you’ll find patient resources including patient support services, patient registry, a physician directory and more. You'll also find access to disease information, research resources and latest news and events.
Reading with Your Infant
Your baby is never too young to be read to! This short video provides tips for reading with infants from CHOP's Reach out and Read Program.
Reading with Your Preschooler
This short video provides tips from the experts at CHOP's Reach Out and Read Program for reading with preschoolers ages 3-5 years.