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Esophageal manometry is a procedure that measures pressure, sensation and coordination of the esophageal muscles. In this video for parents and caregivers, you'll learn about what you and your child can expect during this procedure and watch as it's performed on a medical mannequin
The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life.
Penn State Educational Equity website provides a comprehensive checklist that students with disabilities and their parents can use to help prepare them for a post-secondary education.
Beckwith-Wiedemann Syndrome Support Group – U.K. supports families of children with Beckwith-Wiedemann syndrome, promotes public and professional awareness of BWS, and supports and encourages research.
The Genetics Home Reference is an online guide from the National Institutes of Health designed to help you understand genetic conditions. It includes a handbook, glossary and resources.
National Wilms Tumor Study is a non-profit federally funded research study.
Medline Plus is the National Institutes of Health's website for patients and their families and friends.
The Plastic Bronchitis Foundation provides information about plastic bronchitis, research into treatments, family support services and more. The group also helps raise awareness of plastic bronchitis, funds research into the disease and assists patients and their families with treatment-related travel expenses.
The mission of the LGD Alliance is to improve the care of patients with lymphangiomatosis and Gorham's disease by promoting research that will identify effective treatments and ultimately a cure. On this site, you’ll find patient resources including patient support services, patient registry, a physician directory and more. You'll also find access to disease information, research resources and latest news and events.
Your baby is never too young to be read to! This short video provides tips for reading with infants from CHOP's Reach out and Read Program.