National Urea Cycle Disorders Foundation
The National Urea Cycle Disorders Foundation provides information and resources to those affected by urea cycle disorder (UCD).
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Organic Acidemia Association
The Organic Acidemia Association funds research and provides support for individuals affected by organic acidemia metabolic disorders.
National Tay-Sachs & Allied Disease Association
The National Tay-Sachs & Allied Disease Association is a patient advocacy group that provides support to and resources for families affected by Canavan and related genetic diseases.
United Mitochondrial Disease Foundation
The United Mitochondrial Disease Foundation promotes research for and education about mitochondrial disorders to those affected by them.
Metabolic Support UK
The Metabolic Support UK organization funds research and provides information to families affected by metabolic disorders.
Brain Injury Association of America
The Brain Injury Association of America (BIAA) is the country’s oldest and largest nationwide brain injury advocacy organization.
What to Know During Your Child’s Oncology Hospital Stay
Information about your child’s medical devices, how often a nurse will visit, room cleaning, the patient ID band, and other ways we ensure safe care.
Caring for Diabetes at College
This resource is for patients with diabetes who are going to college.
Tools to Help with Sleep: Guided Meditation
The following resource from Children’s Hospital of Philadelphia (CHOP) provides information about practicing guided meditation to improve sleep.
Express Care
Express Care increases access to dedicated sick care appointments and makes it easier for families to schedule Express Care appointments. Some limitations apply.