CARES Foundation
CARES is a nonprofit organization committed to improving the lives of families and individuals affected by CAH.
Resources
Adrenal and Puberty Center Resources
Our Adrenal and Puberty Center experts have created this list of resources to help you keep your child safe and well.
Referrals
Appointments
Congenital Adrenal Hyperplasia: A Parents’ Guide
Congenital Adrenal Hyperplasia: A Parents’ Guide is a comprehensive guide for parents of children with CAH, written in plain English by an endocrinologist and a mother of a child with CAH.
Living with XXY
A blog by Ryan Bregante about what it means to live with Klinefelter syndrome, also known as 47 XXY, including helpful resources, personal stories, local meetings and much more.
National Adrenal Diseases Foundation
The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life.
The Association for X and Y Chromosome Variations (AXYS)
AXYS, the Association for X and Y Chromosome Variations, is an advocacy, education and support organization for individuals with X and Y chromosome variations and their families. This includes those with Klinefelter syndrome (47,XXY), Trisomy X (47,XXX), 47,XYY, 48,XXYY, 48,XXXY and related genetic conditions.