Beckwith-Wiedemann Syndrome Clinic Resources
Caring for a child with any illness or injury can be overwhelming. To help you find answers to your questions and feel confident with the care you’re providing your child, we’ve created the following list of health resources. We hope they can help make this time in your family’s life a bit easier.
Educational Materials
Beckwith-Wiedemann Syndrome Coloring Book [PDF]
Developed through conversations with families of children with Beckwith-Wiedemann Syndrome (BWS), this coloring book includes simple illustrations and easy-to-understand descriptions of the genetic and epigenetic causes of BWS, as well as information on managing BWS. It's available in English, Spanish, Italian, Chinese, Portuguese, and Hebrew.
Videos
Beckwith-Wiedemann Syndrome (BWS) Overview
This video provides an introduction to genetics, an explanation of the characteristics of Beckwith-Wiedemann Syndrome (BWS), and tips for managing BWS
Caring for Children with Beckwith-Wiedemann Syndrome
In this video, experts from Children’s Hospital of Philadelphia explain why highly specialized, comprehensive care is so important for children with Beckwith-Wiedemann syndrome.
Websites
Beckwith-Wiedemann Children’s Foundation International
http://www.beckwithwiedemann.org
Beckwith-Wiedemann Children’s Foundation International is an organization that provides resources and support to families of children with Beckwith-Wiedemann syndrome.
Genetics Home Reference — Beckwith-Wiedemann syndrome
http://ghr.nlm.nih.gov/condition/beckwith-wiedemann-syndrome/
The Genetics Home Reference is an online guide from the National Institutes of Health designed to help you understand genetic conditions. It includes a handbook, glossary and resources.
Medline Plus — Beckwith-Wiedemann Syndrome
https://www.nlm.nih.gov/medlineplus/ency/article/001186.htm
Medline Plus is the National Institutes of Health's website for patients and their families and friends.