Coping with a Dual Diagnosis
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Parents are usually blindsided when they find out that their child has congenital hyperinsulinism (HI), a rare genetic disorder that depresses blood sugar to dangerously low levels.
Beckwith-Wiedemann Syndrome Clinic News and Updates
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New Cell Models Help Researchers Study Disease Development and Growth Issues in Beckwith-Wiedemann Syndrome
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New Cell Models Help Researchers Study Disease Development and Growth Issues in Beckwith-Wiedemann Syndrome
The Right Hospital for a One-in-a-Billion Child
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Jaylene was born with Beckwith-Wiedemann syndrome (BWS), a rare genetic condition. She had a near-total pancreatectomy at 9 weeks old.
Clinician’s Tip: Oral Feeding in Children with HI and BWS
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An infant with hyperinsulinism (HI) and Beckwith-Wiedemann syndrome (BWS) faces unique challenges with oral feeding.