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Beckwith-Wiedemann Syndrome Clinic News

Every expert on your child's team has the same goal: to see your child thrive. We work together to make sure your entire family gets the support you need.

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Children’s Hospital of Philadelphia Researchers Develop Specialized Growth Charts to Help Doctors Track Rare Pediatric Overgrowth Syndrome

Apr 17, 2025

Researchers from Children’s Hospital of Philadelphia (CHOP) collaborated with other health systems to develop specialized growth charts for children with Beckwith–Wiedemann Spectrum (BWSp), the most common epigenetic overgrowth and cancer predisposition disorder in children. The findings illustrate how newly developed growth charts are designed to better represent how children with the condition grow, which can improve personalized treatment.

Coping with a Dual Diagnosis

Dec 20, 2021

Parents are usually blindsided when they find out that their child has congenital hyperinsulinism (HI), a rare genetic disorder that depresses blood sugar to dangerously low levels.

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