Meet Our Heart Moms

In celebration of the 25th Annual Update on Pediatric and Congenital Cardiovascular Disease, members of Children’s Hospital of Philadelphia’s Cardiac Family Advisory Council share their personal journeys navigating a child’s congenital heart disease (CHD). These featured parents will attend this year’s in-person conference, Cardiology 2022: The New Normal — Transformation in Pediatric and Congenital Heart Care, offering invaluable insight into the experiences of the patients we serve.

A place of hope

Juli A longtime patient of CHOP, Juli’s son, Brandon, will soon transition into adult care through the Philadelphia Adult Congenital Heart Center. Juli shares her journey with CHD and offers advice for other heart families.
Read Juli’s Story

 

Strength in service

Nicole By advocating for CHD research and fundraising through events like CHOP’s Philly Spin-In, Nicole finds strength and hope on her journey with CHD.
Read Nicole’s Story

 

Remembering my heart warrior

Beth Diagnosed with protein-losing enteropathy after undergoing the Fontan, Beth’s daughter, Megan, lost her life at age 19. Learn about the hope Beth’s found in advocacy and the cardiac community.
Read Beth’s Story

 

From surviving to thriving

Elise and Graeme Elise’s son, Graeme, is now a happy, healthy 9-year-old. Elise reflects on the importance of community and the connections she’s found with other heart moms.
Read Elise’s Story


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Mom holding infant cardiac patient

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