Noonan Syndrome: Harper’s Story
Harper has overcome a lot in her young life but her family refuses to let her diagnosis of Noonan syndrome define what she can accomplish.
Cardiac Center Patient Stories
Read stories about patients who have been cared for by the Cardiac Center.
Outpatient appointments
Second opinions, referrals and information about our services
Guided Care for Complex Needs: Lorenzo’s Journey in the Cardiac Kids Developmental Follow-up Program
At Children’s Hospital of Philadelphia, a child with complex CHD and autism receives the developmental support he needs to thrive.
Artificial Heart Surgery: Michael’s Story
A critically ill 10-month-old with heart failure receives an innovative bridge to transplant – performed for the first time at Children’s Hospital of Philadelphia.
From Heart Failure to Healing: Brice's Journey with the Hybrid VAD
A baby is given a second chance at life with an innovative bridge to transplant performed only at Children’s Hospital of Philadelphia and few other institutions.
A Novel Medication, A New Hope: Liam’s PVS Journey
Children’s Hospital of Philadelphia’s Pulmonary Vein Stenosis (PVS) Program treats a baby’s severe PVS with medication typically used to treat cancer.
Almost Undetected: Addison’s Experience with PAPVR
A seemingly benign heart murmur after birth prompts a newborn’s parents to pursue diagnosis and treatment at Children’s Hospital of Philadelphia (CHOP).
Thriving, On and Off the Ice: Morgan’s Journey with HLHS
A young adult with CHD pursues her passion, supported by Children’s Hospital of Philadelphia’s Fontan Rehabilitation, Wellness, Activity and Resilience Development Program.
Arley’s Story: Fetal Surgery for Pericardial Teratoma
Experts from Children’s Hospital of Philadelphia performed lifesaving fetal open heart surgery to remove a tumor growing on Arley’s heart.
Anaya’s Story: A New Pulmonary Valve, a New Life
CHOP’s Cardiac Center makes history when Dr. Katsuhide Maeda implants a MASA polymeric pulmonary valve in a patient’s heart to treat congenital heart defects.
Stephanos’ Story
Stephanos was diagnosed with a congenital heart defect in utero and had three surgeries before he turned 3. Thanks to the Fetal Heart Program at Children’s Hospital of Philadelphia, Stephanos is now a 6-year-old who loves Legos and sports, and swings a mean golf club.