Cornelia de Lange Syndrome Foundation Inc.
The Cornelia de Lange Syndrome Foundation is a nonprofit organization providing families and caregivers with a wealth of support, services, education and information about Cornelia de Lange syndrome (CdLS).
Resources
Center for Cornelia de Lange Syndrome and Related Diagnoses Resources
Our Center for Cornelia de Lange Syndrome and Related Diagnoses experts have created this list of resources to help you keep your child safe and well.
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National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.