Lexi’s story: Specialized clinical care for beta-propeller protein-associated neurodegeneration (BPAN)
Genetic testing determined that Lexi had a very rare genetic disorder known as beta-propeller protein-associated neurodegeneration (BPAN).
Clinic for BPAN and WDR45-related Disorders Patient Stories
Read stories about patients who have been cared for by the Clinic for BPAN and WDR45-related Disorders.
Appointments and questions