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Division of Human Genetics Resources

Our Division of Human Genetics experts have created this list of resources to help you keep your child safe and well.

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How Much Phe?

"A comprehensive diet-management system for PKU with phe/pro/exchange and calorie values for more than 7,000 foods. Easily record, chart, and export your intake and blood levels."

Health resource

National PKU Alliance

The NPKUA provides information and support to adults and families affected by phenylketonuria, advocates for the reimbursement of medical foods, and invests in targeted and peer-reviewed research. Find helpful resources, educational information, news and events, and how you can take get involved.

Health resource

Organic Acidemia Association

The Organic Acidemia Association funds research and provides support for individuals affected by organic acidemia metabolic disorders.

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