Mid-Atlantic Region III Core Center: Regional Statistics

The 14 Hemophilia Treatment Centers in Mid-Atlantic Region III report statistics regarding their patient population to the Core Center annually. This information is used for reporting to our federal grant agency, the Maternal and Child Health Bureau, and is also used by the Core Center for monitoring, budget apportionments and program planning.

Active patients by age, race and gender

In 2015, HTCs in the Mid-Atlantic Region III reported 3,379 total patients.

  • 31 percent are female
  • 79 percent are Caucasian
  • 14 percent are African-American
  • 7 percent are Hispanic

Active patients by diagnosis

Bleeding disorders

  • Hemophilia A or B: 1,842 patients (54 percent).
  • Von Willebrand disease: 1,050 patients (31 percent); 65 percent of female patients have von Willebrand disease.

Thrombosis patients

  • 824 patients were reported in our region from nine of our HTCs; 55 percent of these patients are female.

Other factor deficiencies

  • 191 patients with a deficiency in factor I, II, V, VII, X, XI or XIII. These patients represent 6 percent of the patients in the region.

Evaluations

  • 2,570 comprehensive evaluations were conducted at HTCs in 2015.

Home therapy

  • 1,022 patients with hemophila (55 percent) are on home therapy.

Primary care physicians (PCPs)

  • 2,432 patients in Mid-Atlantic Region III had an identified PCP.

Year-to-year changes

  • 2.5 percent decrease in patients in the Region from 2013 to 2015