NFFA is a parent volunteer group that exists to support families and individuals at CHOP who are affected by  neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) or schwannomatosis.

The American Cancer Society website offers helpful information about childhood cancer diagnosis, treatment, prognosis and resources.

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

The NF2 Crew is an online support community for patients and family members (and other loved ones) with neurofibromatosis type 2.