What to Expect at the CuRED Clinic

Smiling teenage in front of lockersPatients of the CuRED Clinic will be cared for by an integrated, multidisciplinary team of providers including hematology, stem cell transplant, cardiology, pulmonology, neurology, general surgery, orthopaedics, and radiology. Each patient will complete three phases: evaluation, long-term health planning, and care management.

Evaluation

To schedule an evaluation in the CuRED Clinic, contact us. A clinic coordinator will work with you to ensure that all necessary consults, laboratory work and imaging studies required for the initial evaluation have been completed. This coordinator will facilitate all visits going forward and is available to answer your questions at any time.

During your first appointment, all treatment options will be discussed to determine the best option – curative and non-curative – based on underlying disease status and your preferences.

Long-term health planning

Based on these discussions, a personalized road map will be developed to either prepare you/your child for curative therapy or for ongoing comprehensive care in the Division of Hematology at Children’s Hospital of Philadelphia. This roadmap will be finalized and reviewed with you.

Curative therapies

  • Hematopoietic stem cell transplantation (HSCT): Patients who choose traditional HSCT will be offered allogeneic HSCT via the Cellular Therapy and Transplant Section at CHOP. The CuRED team will help to guide you through the process of preparing for and receiving a stem cell transplant.
  • Gene therapy: A small subset of patients may be eligible for gene therapies. CuRED will provide the most advanced of these therapies.

Non-curative therapies

If the patient/family prefers non-curative treatment options, our team will discuss novel treatments with recently approved or experimental drugs available through clinical trials.

Care management

Our team will provide comprehensive follow up for all patients treated through the CuRED Clinic. Post-therapy management of disease-related complications such as transfusional iron overload and chronic pain will be addressed during follow-up visits.