Tuberous Sclerosis Clinic
Having a child with tuberous sclerosis, a rare genetic condition, can be challenging. The condition causes benign tumors to grow in the brain and other areas such as the kidneys, heart, liver, eyes, lungs and the skin. These growths can lead to medical complications if left untreated, so frequent monitoring is necessary. We are here for you at Children's Hospital of Philadelphia (CHOP).
Our Tuberous Sclerosis Clinic streamlines care by offering you and your child access to all the specialists you need in one visit. After each appointment with you, we meet as a team to review imaging studies and align our plan for future care.
How we serve you
The Tuberous Sclerosis Clinic brings together a team made up of kidney and brain specialists. After each visit with your child, we all meet to make plans for treatment. This helps streamline your experience so you don't have to visit the clinic as often to see many different doctors.
Conditions we treat
Our clinic is open to all children diagnosed with tuberous sclerosis, a rare genetic condition that causes benign tumors to grow in the brain, kidneys, heart, liver, eyes, lungs and the skin.
Meet your team
The Tuberous Sclerosis Clinic is co-led by a nephrologist and neurologist, and also includes a neuro-radiologist and body imaging radiologist. We all work together to create the best plan of care for your child.
Tuberous Sclerosis Clinic resources
Caring for a child with an illness can be overwhelming. We have resources to help answer your questions and make this time in your family’s life a bit easier.
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