Tuberous sclerosis is a rare genetic condition that causes benign tumors to grow in the brain and other organs such as the kidneys, heart, liver, eyes, lungs and the skin. These growths can lead to medical complications if left untreated. Hence imaging studies such as ultrasound and MRI are performed frequently to monitor the growth of these tumors.
Who we treat
Our clinic is open to all children diagnosed with tuberous sclerosis.
What we offer
We use a multidisciplinary approach to offer treatment for patients with kidney and brain manifestations of tuberous sclerosis. Combined clinics, such as the Tuberous Sclerosis Clinic, decrease the number of visits that patients and families need to make by offering access to several specialists in one visit.
The Tuberous Sclerosis Clinic is co-led by a nephrologist and neurologist. Following each clinic visit, a combined conference is held with a neuro-radiologist and body imaging radiologist to review patient imaging, such as MRIs and ultrasounds, and confer with physicians on the appropriate plans for treatment and follow-up visits.
To learn more about this clinic, including dates and times and how to enroll, contact:
Ariana Lee — Nephrology coordinator 215 590 2449
Christina McGill — Neurology coordinator 215 590 1719