Beckwith-Wiedemann Syndrome Clinical Pathway — N/IICU
Beckwith-Wiedemann Syndrome Clinical Pathway — N/IICU
Patient and Family Education
Beckwith-Wiedemann Syndrome Clinic
Coloring Books for Families
Developed through conversations with families of children with Beckwith-Wiedemann Syndrome (BWS), this coloring book includes simple illustrations and easy-to-understand descriptions of the genetic and epigenetic causes of BWS, as well as information on managing BWS.
Educational Video
The Introduction to Beckwith-Wiedemann Syndrome (BWS) video, an animated version of the BWS coloring book, provides an introduction to the genetics and epigenetics of BWS, an explanation of the characteristics of BWS, and tips for managing BWS.
PFEs