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Beckwith-Wiedemann Syndrome — Patient and Family Education — Clinical Pathway: ICU and Inpatient

Beckwith-Wiedemann Syndrome Clinical Pathway — N/IICU

Patient and Family Education

Beckwith-Wiedemann Syndrome Clinic

Coloring Books for Families

Developed through conversations with families of children with Beckwith-Wiedemann Syndrome (BWS), this coloring book includes simple illustrations and easy-to-understand descriptions of the genetic and epigenetic causes of BWS, as well as information on managing BWS.

Educational Video

The Introduction to Beckwith-Wiedemann Syndrome (BWS) video, an animated version of the BWS coloring book, provides an introduction to the genetics and epigenetics of BWS, an explanation of the characteristics of BWS, and tips for managing BWS.

PFEs

 

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