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Beckwith-Wiedemann Syndrome — Potential Barriers to Discharge — Clinical Pathway: ICU and Inpatient

Beckwith-Wiedemann Syndrome Clinical Pathway — N/IICU

Potential Barriers to Discharge

Case Manager continuously assesses the following:

Current Insurance Coverage
  • None
  • Inadequate
  • Non-par status
Geographic Challenges
  • Family lives far from CHOP
  • Limited local home care, equipment, supply vendors
  • Regimen requires technology not supported locally
Home Environment
  • Inadequate housing to support needed technology
    • No permanent dwelling
Caregivers
  • Challenges to caregiver learning
    • Limited support system (family/friends to help)

 

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