Spinal Muscular Atrophy (SMA) with Acute Respiratory Failure Clinical Pathway — PICU

Discussing a Tracheostomy with Family

  • Ideally, discussion occurs in outpatient settings
  • If invasive ventilation imminent, ICU Attending/Fellow should consider exploring the family’s wishes regarding the role of tracheostomy in their child’s care. Ideally, this discussion should occur with the primary pulmonologist and PACT team.
  • Providers should:
    • Reassure the family that discussion is for information purposes
    • Reassure the family that their wishes, including palliative care, will be honored as much as possible
    • Explore alternate modes of therapy if not already done

See Considerations for a Tracheostomy for indications.