22q11.2 Deletion and Duplication Syndromes Resources

Support and Education Groups


ASHA is the national professional, scientific and credentialing association for audiologists; speech-language pathologists; speech, language and hearing scientists; audiology and speech-language support personnel; and students.

The Dempster Family Foundation is dedicated to improving the quality of life for the growing community of those affected by 22q11.2 deletion syndrome.

The Foundation provides medical, educational, psychosocial and local support resources for people with the 22q11.2 deletion syndrome and their families.

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.