22q11.2 Deletion and Duplication Syndromes Resources
American Speech-Language-Hearing Association (ASHA)
ASHA is the national professional, scientific and credentialing association for audiologists; speech-language pathologists; speech, language and hearing scientists; audiology and speech-language support personnel; and students.
Support and Education Groups
22q International Support Groups
Find a list of International support groups for chromosome 22q11.2 deletion.
22q Support Groups in the United States
Find a list of support groups for chromosome 22q11.2 deletion in the United States.
American Academy of Allergy, Asthma & Immunology
AAAI is an international society for patients and healthcare professionals that provides expert resources including condition content, advocacy tools and more.
American College of Allergy, Asthma & Immunology
The American College of Allergy, Asthma & Immunology provides information and resources about allergies and asthma for patients and families.
Dempster Family Foundation
The Dempster Family Foundation is dedicated to improving the quality of life for the growing community of those affected by 22q11.2 deletion syndrome.
International 22q11.2 Foundation Inc.
The Foundation provides medical, educational, psychosocial and local support resources for people with the 22q11.2 deletion syndrome and their families.
National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
Pennsylvania Speech-Language-Hearing Association (PSHA)
PSHA advocates for the communicatively disabled and the professionals who serve them to insure that the integrity of services is maintained.