AAAI is an international society for patients and healthcare professionals that provides expert resources including condition content, advocacy tools and more.
The Cornelia de Lange Syndrome Foundation is a nonprofit organization providing families and caregivers with a wealth of support, services, education and information about Cornelia de Lange syndrome (CdLS).
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.