Epidermolysis Bullosa Resources
Caring for a child with any illness or injury can be overwhelming. To help you find answers to your questions and feel confident with the care you’re providing your child, we’ve created the following list of health resources. We hope they can help make this time in your family’s life a bit easier.
Websites
Dystrophic Epidermolysis Bullosa Research Association of America (debra)
http://www.debra.org/
A nonprofit organization, debra of America provides free programs and services for children and families affected by epidermolysis bullosa (EB). Their website offers educational materials, patient stories, events information, ways you can get involved and much more.