CHOP Embarking on Interventional Trial
To date, the effects of exercise have not been studied in children with Friedreich’s Ataxia – until now.
Read moreFriedreich's Ataxia News and Updates
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In Pursuit of Cure for a Rare Degenerative Disease
Published on in Children's View
A rare degenerative disease strikes during childhood. A multimillion-dollar gift is fueling CHOP scientists’ search for a cure.
2016 Black Tie Tailgate Raises More than $550,000 for the Division of Neurology at CHOP
Published on in CHOP News
The 2016 Philadelphia Auto Show’s Black Tie Tailgate broke records, with more than 4,800 people helping to raise over $550,000 for the Division of Neurology.
Friedreich’s Ataxia: Taking Shots on Goal for a Rare Disease
Published on in Neurosciences Update, International Update
Researchers rarely use the word "cure" when studying a rare disease with no approved therapies. At the Friedreich's Ataxia Center of Excellence, the word "cure" is now in the lexicon.
Amazing Grace
Published on in Children's View
The new Friedreich’s Ataxia Center of Excellence gives hope and education to Grace Haupt and patients just like her.
$3.25 Million Gift Creates Friedreich’s Ataxia Center of Excellence
Published on in CHOP News
Donations from Friedreich’s Ataxia Research Alliance and the Hamilton and Finneran Families helps launch Penn Medicine/CHOP Center to improve research and care for Friedreich's Ataxia, a rare, degenerative disease.