Inflammatory Bowel Disease Resources
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For Parents and Caregivers
AGA includes more than 16,000 members from around the globe who are involved in all aspects of the science, practice and advancement of gastroenterology.
The Crohn's and Colitis Foundation is a nonprofit, volunteer-driven organization dedicated to finding the cures for Crohn's disease and ulcerative colitis
NASPGHAN strives to improve the care of infants, children and adolescents with digestive disorders by promoting advances in clinical care, research and education.
This book explains the symptoms, diagnoses and treatments associated with IBD, and provides parents with practical advice on how to tell their children about IBD. It also discusses the challenges children may face at school and in their social lives, especially as they grow older.
Camp Oasis was established by the Crohn's and Colitis Foundation to enrich the lives of children with Crohn's disease and ulcerative colitis.
Life Uncommon is a video series about children and adolescents with IBD and the professionals who care for them at CHOP.
Developed by doctors and patients, the app includes features that help you and your doctor better understand your IBD treatment.
For Children and Teens
GIKids provides easy to understand information about the treatment and management of these pediatric digestive conditions for children and parents.
A dedicated website for teens with IBD powered by the Crohn’s and Colitis Foundation. It provides information about life with Crohn's and ulcerative colitis, treatments and research, as well as ways to connect with other teens with IBD, including forums and support groups.
Is committed to improving the nation's health and advancing the profession of dietetics through research, education and advocacy.
ASPEN is dedicated to improving patient care by advancing the science and practice of clinical nutrition and metabolism.
The Family Research Council (FRC) is a volunteer organization of families raising research dollars for the IBD Center.
Support and Education Groups
We welcome children, adolescents and families to join us to discuss their concerns and the emotional challenges of living with Crohn's disease and ulcerative colitis.
The AAP is committed to the optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.
The CDC is dedicated to protecting health and promoting quality of life through the prevention and control of disease, injury and disability.
ImproveCareNow uses scientific data to drive improvements for kids with Crohn’s disease and ulcerative colitis.
NDDIC provides information about digestive diseases, statistics, research and more, from the National Institute of Diabetes and Digestive and Kidney Diseases.
UOAA is an organization that provides support, information and advocacy to ostomates and their caregivers.