Mitochondrial Disease Resources

Caring for a child with any illness or injury can be overwhelming. To help you find answers to your questions and feel confident with the care you’re providing your child, we’ve created the following list of health resources. We hope they can help make this time in your family’s life a bit easier.

General Mito Education

This tool provides information to help families and practitioners learn more about mitochondrial disease.

Patient Support Groups/Advocacy

The Cure Mito Foundation's mission is to unite the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures.

The United Mitochondrial Disease Foundation promotes research for and education about mitochondrial disorders to those affected by them.


The Metabolic Support UK organization funds research and provides information to families affected by metabolic disorders.