NFFA is a parent volunteer group that exists to support families and individuals at CHOP who are affected by neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) or schwannomatosis.
In this webinar CHOP experts discuss neuropsychological evaluation, the legal rights of students, and how to support your child as he returns to learning.
Changing Faces provides support and promotes respect for everyone with a visible difference. Helpful resources include advice for meeting new people when you have a visible difference.
Find detailed information about Neurofibromatosis 2 in this article written by D Gareth Evans, MD, FRCP, director of the Neurofibromatosis Clinic at St. Mary's Hospital, Manchester, United Kingdom.
GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.
Provides information about neurofibromatosis type 2 and the genes involved. The website offers educational resources, patient support materials and links to clinical trials.
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
Neurofibromatosis Network is the leading national organization advocating for federal funding for NF research and the development of local NF organizations.