Pallister-Killian Syndrome Resources
Caring for a child with any illness or injury can be overwhelming. To help you find answers to your questions and feel confident with the care you’re providing your child, we’ve created the following list of health resources. We hope they can help make this time in your family’s life a bit easier.
Websites
CHOP Division of Human Genetics
The Division of Human Genetics at The Children's Hospital of Philadelphia diagnoses and cares for children and adolescents with rare genetic diseases.
National Organization for Rare Disorders (NORD)
http://www.rarediseases.org/
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
PKS Kids
http://www.pkskids.net
PKS Kids is a nonprofit organization that helps people involved with Killian-Pallister Syndrome.
UNIQUE
http://www.rarechromo.org
UNIQUE informs, supports and alleviates the isolation of anyone affected by a rare chromosome disorder and raises public awareness.