Pediatric Brain Tumors Resources

The Cellie Cancer Coping Kit, developed by experts at CHOP, includes a stuffed toy, cancer coping cards, and a book for caregivers.

Support Groups

It offers support groups, lectures, workshops and social events as a supplement to medical care in a warm and welcoming home-like setting.


For Parents and Caregivers


Videos

The Children's Hospital of Philadelphia has one of the best fertility preservation programs in pediatric oncology, offering choices for teenagers and young women as well as girls who have not yet experienced puberty.

screenshot of live oncology webinar

The videos in this playlist are recordings of webinars presented by experts from The Cancer Center at CHOP on a variety of topics including caregiving, coping, survivorship, teen cancer, PTSD, school, siblings, loss and more.

Pediatric Brain Tumor video screen

Families travel from around the world to be treated by the pediatric neurosurgery team at The Children's Hospital of Philadelphia. This video series explains several neurosurgery procedures performed by pediatric neurosurgeons at CHOP and current brain tumor research.

In this webinar CHOP experts discuss neuropsychological evaluation, the legal rights of students, and how to support your child as he returns to learning.


Websites

2bme is home to a collection of short articles for teens with cancer. Topics include handling non-medical issues like diet, body image and relationships.

The American Cancer Society website offers helpful information about childhood cancer diagnosis, treatment, prognosis and resources.

The American Childhood Cancer Organization® is the largest publisher and distributor of free childhood cancer books in the country.

The Andre Sobel River of Life Foundation helps with urgent expenses to allow single parents to stay at their child's bedside during catastrophic illness.

It awards college scholarships to childhood cancer survivors who have demonstrated the ability to overcome the difficult challenges of cancer with determination and motivation.

The fund supports patients 18-40 currently undergoing cancer treatment with services to meet daily needs.

Cancer Hope Network provides free and confidential one-on-one emotional support to cancer patients, their caregivers, and their family members.

The Cancer Survivors Network of the American Cancer Society offers discussion boards and chatrooms where you can meet your CSN "neighbors" and develop friendships. 

A non-profit organization providing college scholarships and prosthetics to benefit people diagnosed with cancer, receiving treatment for cancer or in remission.

CancerCare provides telephone, online and face-to-face counseling, support groups, education, publications and financial assistance to people facing a cancer diagnosis.

It lets you create a free website that acts as a virtual diary of your child's cancer experience. Update it at anytime, from anywhere, to keep your family and friends up to date.

It offers support to those who find themselves in the most challenging situation of their lives — battling a cancer diagnosis and undergoing treatment.

Its mission is to improve the treatment, quality of life and the long-term outlook of children with brain tumors through research, support, education, and advocacy to families and survivors.

Helps teens with cancer navigate their chemotherapy treatments through education and by fostering connections with others through blogging and chat rooms.

Critical Mass is a coalition of organizations which have the collective goal to improve survival rates and quality of life for young adults with cancer.

Offers young adult cancer fighters and survivors a free outdoor adventure experience designed to empower them to climb, paddle and surf beyond their diagnosis.

Group Loop provides online support, information and resources for teens living with cancer and their families.

Headcovers Unlimited has hats, turbans and wigs for hair loss and cancer patients.

Is a one-on-one cancer support service that connects a person fighting cancer with a survivor who has beaten the same type of cancer.

Lotsa Helping Hands lets you create a free, private, online community to organize family, friends, neighbors and colleagues during times of need.

It offers live and archived webinars, interactive discussions on topics related to grief, written resources and additional websites, and online activities for children, teens and families.

The National Brain Tumor Society is committed to moving research toward new treatments, fighting for policies that improve lives, and providing information and resources.

NCI's website includes links to information about treatment, clinical trials, testing and research.

The mission of the National Coalition for Cancer Survivorship is to advocate for quality cancer care for all people touched by cancer.

It offers bereavement kits in English and Spanish and valuable reading materials such as After a Loved One Dies, When Families Grieve (Muppets DVD) and more.

OncoLink is a website maintained by the Abramson Cancer Center at the Hospital of the University of Pennsylvania. It features a wide variety of information on adult and pediatric cancers.

The Pediatric Brain Tumor Foundation provides free educational information about brain tumors, college scholarships and Ride for Kids motorcycle charity events.

Planet Cancer is an online community for people in their 20s and 30s with cancer.

Prepare to Live is the only nonprofit, charitable organization founded and managed by cancer survivors, dedicated to using the power of the Web and documentary-style filmmaking.

Sara's Smiles Foundation provides a variety of resources to entertain, comfort and educate children with cancer.

It's a nonprofit organization dedicated to providing personalized songs for children and teens currently facing tough medical, physical or emotional challenges, free of charge.

Starbright World is an online social network for teens with chronic and life-threatening illnesses and their siblings.

It provides entertainment, education and family activities to help children with chronic and life-threatening illnesses to cope with the pain, fear and isolation of prolonged illness.

Team IMPACT is a nonprofit chartered to improve the quality of life for children facing life-threatening illnesses.

It has raised more than $2 million for cancer research at The Children’s Hospital of Philadelphia and has provided assistance and support to countless families and individuals affected by cancer.

It provides free college admissions and financial aid counseling to high-school and college-aged children and their families who are dealing with issues related to pediatric cancer.


Coping

This tool will help children with cancer and their caregivers learn all the the ways they can use the Cellie Cancer Coping Kit during cancer treatment.


Books

This book provides clear explanations and practical advice for children ages 6-12 through warm and funny illustrations to help them make sense of cancer and its treatment.

This book features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas.

This is a story of a 9-year-old who has always enjoyed wearing hats. But when she loses her hair from cancer treatments, suddenly hats aren't so much fun anymore.


Camps

Camp Mak-A-Dream offers sessions for cancer patients and their siblings. It's located in Gold Creek, Montana.

It's a kosher camp for children with cancer and other life-threatening illnesses, located on 125 acres in Glen Spey, New York. The camp is one of the many services provided by Chai Lifeline.

This camp provides respite, professional counseling and recreational opportunities for families facing the physical, emotional and financial strain of a child with a critical illness.

This is an overnight camp for kids with cancer and their siblings. It's run by CHOP's Oncology division staff, and provides 24-hour on-site medical coverage.


Hair Loss

Hair Club for Kids provides free hair restoration for children battling hair loss as a result of illness.

It provides hats with human or synthetic hair attached for girls with hair loss due to chemotherapy.

Locks of Love offers hairpieces to financially disadvantaged children who are suffering from long-term medical hair loss from any diagnosis.

Wigs for Kids is a non-profit organization that provides wigs and accepts hair donations.