Harper’s Story: Expert Care and Hope for Children with Spina Bifida
When Harper’s parents learned she had spina bifida, fear turned to hope at CHOP. Their journey shows what expert care and family partnership can achieve.
Patient stories
Spina Bifida Patient Stories
VACTERL Association: Zuri’s Story
From in-utero detection of spina bifida to treating heart and airway issues linked to VACTERL, CHOP’s multidisciplinary specialists delivered life-saving care to Zuri.
Siena’s Story: Fetal Surgery for Myelomeningocele
A life-altering experience — and life-changing care — at Children’s Hospital of Philadelphia’s Richard D. Wood Jr. Center for Fetal Diagnosis and Treatment inspired Siena’s family to ease the burden for others.
Christian’s Story: 24 Years After Fetal Surgery for Spina Bifida
In 2000, Christian had fetal surgery for spina bifida at CHOP. Today, he’s an EMT. Follow his journey.