VACTERL Association: Zuri’s Story
From in-utero detection of spina bifida to treating heart and airway issues linked to VACTERL, CHOP’s multidisciplinary specialists delivered life-saving care to Zuri.
Patient stories
Spina bifida causes, symptoms and treatment Patient Stories
Siena’s Story: Fetal Surgery for Myelomeningocele
A life-altering experience — and life-changing care — at Children’s Hospital of Philadelphia’s Richard D. Wood Jr. Center for Fetal Diagnosis and Treatment inspired Siena’s family to ease the burden for others.
Christian’s Story: 24 Years After Fetal Surgery for Spina Bifida
In 2000, Christian had fetal surgery for spina bifida at CHOP. Today, he’s an EMT. Follow his journey.
Growing up with spina bifida: Valerie’s story
Valerie, now 20 and pursuing a career in video game design, has been followed by CHOP’s Spina Bifida Program for most of her life.