Syndromic Craniosynostosis Resources
Caring for a child with any illness or injury can be overwhelming. To help you find answers to your questions and feel confident with the care you’re providing your child, we’ve created the following list of health resources. We hope they can help make this time in your family’s life a bit easier.
Diagnosis and Treatment of Craniofacial Conditions
In this video, clinicians and patient families talk about the diagnosis and treatment of craniofacial conditions, including craniosynostosis, hemifacial microsomia, and other syndromes.
Philly Phaces provides peer support, advocacy, and resources to help Philadelphia-area children facing appearance differences from craniofacial abnormalities and cleft lip and palate.