The Sickle Cell Disease Parents Network was developed to provide support for parents and caregivers of children living with sickle cell disease through education and advocacy. The Network meets bi-monthly at CHOP, to discuss issues that are vitally important for families. Topics addressed range from research to management of sickle cell disease. To learn more, contact Charles Adams, MSW at 215-590-4164.
The Teen Group was developed to enhance adolescents' knowledge about sickle cell disease, encourage & develop coping skills and address adolescent social concerns. To learn more about meetings dates, contact Trudy Tchume-Johnson, LSW at 267-426-5037.