We're very proud of the compassionate, highly qualified, competent professionals who make up our Spina Bifida Program team. Here, you can familiarize yourself with our newest team members and learn a little bit about their expertise and interests before meeting them in clinic.

Ena Agbodza, BA, Clinical Research Coordinator

Ena joined the neurosurgery research team at Children's Hospital of Philadelphia (CHOP) last year and is the new research coordinator for our clinic's branch of the National Spina Bifida Patient Registry. Before coming to CHOP, she studied psychology and biology at The University of Pennsylvania and spent two years working as an undergraduate research assistant for a radiologist at Penn Medicine. After a year of caring for orthopaedic, stroke, and COVID-19 patients as a nursing assistant in her hometown community hospital, she decided to return to Philadelphia to pursue her passion for clinical research full time.

“I’m excited to talk to all of you about the registry and look forward to meeting everyone in clinic,” says Ena.

Susan Hull, Nurse

Susan calls herself “a Delaware County lifer.” She attended grade school at St. Charles Borromeo School, high school at Monsignor Bonner and Archbishop Prendergast Catholic — aka “Prendie” — and nursing school at Widener University. Family centered care has been her love for 31 years, from the pediatric intensive care unit at St. Christopher’s Hospital for Children, to pediatric home care, and finally the newborn intensive care unit at Delaware County Memorial Hospital.

“I love being around kids; their sense of awe, wonder and humor bring me joy,” she says. Teaching and teamwork are her strengths, and she has the ability to work very well under pressure. Outside of work, Susan enjoys travelling with her husband, telling great stories and spoiling her 11-year-old labradoodle Reighly. “I am very excited to be a part of the Spina Bifida Program at CHOP,” she says.

Tanya R. Jones, Registered Nurse

Tanya has extensive experience in pediatric nursing. She earned her diploma in nursing from the Frankford Hospital School of Nursing Program in 1994 and continued her nursing education until she received her Master of Science in Nursing from Immaculata University in 2021. An advocate for education, she earned and has maintained her Pediatric Nursing Certification since 2008. “I enjoy providing care and teaching pediatric patients and their family members,” says Tanya. She also likes teaching aspiring nurses, so she currently teaches per diem at Jefferson College of Nursing.

“Over the past 28 years, I’ve worked in inpatient and outpatient settings learning various specialties such as neonatal and postpartum nursing,” says Tanya. “Now, I’m looking forward to working with the various specialists at CHOP’s Spinal Bifida Program and assisting spina bifida pediatric patients and their families with managing their complex care.”

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