When Grayson was a baby, he had trouble feeding, and then struggled to learn to walk and speak. At age 4, he suffered his first seizure. In search of answers, his parents discovered the Leukodystrophy Center at Children’s Hospital of Philadelphia (CHOP). It was there that specialists confirmed Grayson had Alexander disease, a rare and usually fatal disease that affects the white matter of the brain.
In a Washington Post article, Amy Waldman, MD, a pediatric neurologist at CHOP and Director of the Leukodystrophy Center, talks about research underway to better understand Alexander disease in an effort to develop treatment.
Read more the family’s experiences with Alexander disease, and their fight to find a cure by raising money to fund critical research.