| BWS Clinic |
- Appointments and Referrals
|
| Pediatrician |
- Familiar with Beckwith-Wiedemann Syndrome
- Schedule appointment for 2-3 days following discharge
|
| Required Subspecialty Follow-up |
- Tumor Screening
- Can be followed by Oncology/Cancer Predisposition, Pediatrician, Genetics
- Determine which team will follow tumor screening prior to discharge
- Obtain AFP/abdominal ultrasound prior to discharge, continue every 3 months
until 4th birthday
- Subsequently, renal ultrasounds every 3 months until 7th birthday
- Obtain specific instructions and follow up required from each specialty
- General Pediatrics
- General Surgery
- Plastic Surgery
- Pulmonology
- Endocrinology
- Feeding Team
- Early Intervention Assessment
- Make complex scheduling referral to assist in appointment scheduling for all necessary subspecialty follow-up appointments.
|
| Subspecialty Follow-up Intervals |
- Each service will determine their own follow-up interval
- Make all appointments prior to infant's discharge (refer through complex scheduling)
- Provide family with contact information for all specialties
|
| Follow-up Intervals for Out-of-area Patients |
- Determine follow-up interval from:
- Consult team/notes
- Recommendations for consultants in patient’s home area
- Verify that the family has made all recommended follow-up appointments based prior to discharge
- Assist the family as necessary to schedule these appointments
|